Advocating for Better Kidney Care for All
What is the Patient Partner Coalition for Transplant 1st?
The creation of a Patient Partner Coalition (PPC) is a key outcome of a Patient Partner Workshop held July 2022, with kidney transplant recipients and living kidney donors who met to brainstorm roles they can play in translating best practice kidney transplant research findings as well as other research initiatives.
We believe kidney recipient, dialysis patients and living donors have a unique opportunity, credibility, and authenticity through their individual and collective lived experiences to help disseminate research about best practices in kidney health in a way that researchers and other stakeholders may not be able to do – because of professional conflicts, time restraints or other factors. Patients can persuasively request for and be part of building a more transparent and accountable healthcare system by:
- Understanding what kidney and transplant best practices have been published and established;
- Identifying which best practices are being followed by which renal programs/transplant hospitals;
- Presenting on and informing a broad audience about these best practices and why it is important they be adopted as standard practice;
- Asking administrators to be accountable for the effectiveness of their programs and health delivery processes
Meet our Members
Partnering with Can-SOLVE CKD
The PPC is helping to advance one of the Can-SOLVE CKD research projects entitled Mobilizing Research Findings to Achieve More Living Donor Kidney Transplants.
This research project is supported and funded in part by the Can-SOLVE CKD Network, Canada’s largest-ever kidney research initiative. Can-SOLVE CKD is a national partnership of patients, researchers, health care providers, and policy-makers working to transform treatment and care for Canadians affected by chronic kidney disease. This unique network is one of five chronic disease networks supported by the Canadian Institutes of Health Research through Canada’s Strategy for Patient-Oriented Research (SPOR). This project is focused on:
- Disseminating best practice transplant research by leveraging our passion, experiences and learnings as patients and kidney donors within the healthcare system
- Developing benchmarks for an efficient living donor kidney evaluation (e.g., how long it should take for candidates to learn if they are eligible to donate).
- Translating metrics for an efficient living donor kidney evaluation into scorecards to track how well programs are meeting targets.
- Translating the results of our process evaluation evaluating our quality improvement intervention to help more eligible patients in Ontario receive a kidney transplant.
- Test and evaluate solutions to improve the efficiency of living donor kidney evaluations.
The Patient Partner Coalition is working to implement the findings from this project through targeted implementation campaigns set forth in the Coalition’s knowledge translation framework. The Coalition’s first targeted campaign is the Transplant 1st Campaign.
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